Show simple item record

dc.contributor.advisorBarakat, Caroline
dc.contributor.advisorWeaver, Robert
dc.contributor.authorVizza, Julie
dc.date.accessioned2018-07-16T13:51:26Z
dc.date.accessioned2022-03-29T16:56:57Z
dc.date.available2018-07-16T13:51:26Z
dc.date.available2022-03-29T16:56:57Z
dc.date.issued2018-04-01
dc.identifier.urihttps://hdl.handle.net/10155/924
dc.description.abstractBeta-thalassemia Major (b-TM) is a chronic medical condition. Effective illness management requires adherence to arduous medical treatment to ensure a life free of life-threatening complications. This qualitative study characterizes the experiences of adolescents living with, and managing b-TM on the cusp of transitioning from pediatric to adult orientated institutions of care. Using the methodological approach of interpretive phenomenology and conducting semi-structured interviews with five participants, five themes were identified. These include: knowledge and understanding of b-TM; role of familial support; self-reflection and disclosure; comradery; and readiness to transition, including the impact of incorporating a Health Transition Specialist as a member of a comprehensive health care team. The findings identify key factors that impact the daily lives of adolescents with b-TM, as they adapt to required self-management practices, navigate the health care system, and transition to adult care.en
dc.description.sponsorshipUniversity of Ontario Institute of Technologyen
dc.language.isoenen
dc.subjectAdolescenten
dc.subjectChronic illnessen
dc.subjectBeta-thalassemia majoren
dc.subjectTransitionen
dc.subjectAutonomyen
dc.titleA whole new world: the experiences of adolescents with beta-thalassemia major as they transition to adult careen
dc.typeThesisen
dc.degree.levelMaster of Health Sciences (MHSc)en
dc.degree.disciplineCommunity Healthen


Files in this item

Thumbnail

This item appears in the following Collection(s)

Show simple item record